I’ve been meaning to post this for a few days now, but it’s been a bit crazy here this week. We are making some progress in figuring out what’s going on with Logan! First a quick update: last week we went into the pediatricians office for a few more blood tests. Those results showed anemia, and a low IgA, which led to more questions. The pediatrician spoke with oncology, who wanted us to visit with immunology to do a work up of Logans immune system. While there, they took a TON of blood and did a skin prick test on him for Candida.
Here’s what we know:
- The issue with Logans lymph nodes being enlarged is a separate issue than what’s going on with his immune system.
- They believe that Logan has a very rare medical condition known as Rosai Dorfman Disease (RDD). There have been 650 reported cases world wide since it was “discovered” in 1969. We will need a biopsy of his lymph nodes to confirm this diagnosis. RDD is basically where the body over produces a certain white blood cell, where they accumulate in lymph nodes. Most cases (70-80%) resolve on their own, and no treatment is necessary.
- We know that Logan is anemic. His iron level was 17 (18-55 normal range), his UIBC is 421 (range 148-395) and iron saturation is 4% (15-55%). We are to increase his iron intake and retest in a few months.
- In this latest round of testing we also learned that Logan’s IgA is really low. It should be between 21 and 111, with an average of 60 at 16 months old. Logan’s level is 14. IgA is the antibodies produced by the body to fight infection, bacteria, viruses, toxins and also comes into play when your body is having an allergic reaction.
- While at the immunology appointment, we discussed how Logan has always suffered from yeast infections, whether it be oral thrush or rashes in his diaper area. The did a skin prick test on him with Candida, which came back positive. In the grander scheme of things we don’t know what this means.
- We have been given the go ahead to use essential oils on Logan to boost his immune system and support his lymphatic system.
What we don’t know:
- Blood tests have been drawn to see how the rest of his immune system is functioning. We don’t know if any of his other antibodies (IgG, IgM and IgE) have been affected, but should know more in a few days.
- We don’t know why Logan is anemic. He eats an iron rich diet already, and takes a vitamin gummy with added iron in it daily.
- We don’t know if Logan has an allergy related to Candida that is causing a low IgA response, or if his immune system has been compromised and he just can’t kick the yeast.
Throughout all of this, Logan has been such a trooper. He is loving life as always and is just a joy. He doesn’t seem to be bothered by much aside from the pokes at the doctor, and is just as rambunctious as ever.