I had a minor panic attack at 10 o’clock this morning when I realized that exactly one week from that moment little man would be going in for surgery. As prepared as I am for the surgery, I am absolutely scared to death. Part of me doesn’t want to go through with this, but for the sake of my son it needs to be done.
I spent a little while today getting the final ducks in a row for this to take place. This included a phone call to the urologist to discuss post op pain medication and a discussion with his hematologist about the possibility of him having an issue with bleeding.
I spoke with the urologist first. The standard protocol for pain management is oxycodone in a liquid suspension and alternating infant Tylenol and Motrin. Well, because of the possibility of Luke having a platelet disorder he cannot take the Motrin (or any ibuprofen products)…..so that’s out. He also has a GI reaction to Tylenol, so that’s out as well. We did trial Little Remedies pain reliever last night, and while he hasn’t pooped yet he wasn’t up all night with an upset tummy. That just leaves the oxycodone. We aren’t sure if it has milk or soy in it so I need to get in touch with the pharmacy.
The hematology phone call really got me stressed. Because of the possibility of Luke having the platelet issue, I am to start giving him Amicar the night before surgery, with the last dose between 6:30 and 7 am. In the off chance the Amicar has either dairy or soy in it….or Luke reacts to it, they would do a platelet transfusion in the O.R. They also want to go ahead with the platelet function testing now instead of when Luke is 18 months because of the issue of bloody stools. Although we know it’s a GI response, improper clotting could be adding to that.
Additionally, Luke can’t have any formula after 3 am, pedialyte until 7 am, and nothing by mouth after 7. We are waiting to hear about his reflux meds from anesthesia. He will be unable to play in his jumper for 2 weeks (or more) and can’t have any compression between his legs.
There is so much going on that I can’t focus. I’m stressed to maximum capacity.