The title says it all…..Luke went back to the pediatric GI today for a follow-up. He has gained 9 ounces in 26 days, which isn’t the best……but he is gaining so they are only slightly concerned with that. We basically talked about how the past almost month has been, and laying out the next steps.
Basically, the past 26 days have been an almost complete turn around in Luke’s eating habits and behavior. I say almost because we had a slight regression with the reintroduction of breast milk. He is no longer pooping blood or mucus, no longer in any pain when eating, doesn’t arch his back and is doing much better in the car. Unfortunately even with the prevacid and zantac, Luke is still suffering pretty badly from reflux. (He literally puked a good 4 feed onto the doctor while we were sitting there, and the medical student nearly vomited seeing the doctor get puked on haha)
The next steps are somewhat a trial by fire. Luke is only on Elecare as far as formula goes now. At first there was some discussion about trying the Nutramigen again, but that isn’t going to happen now. He also had a blood draw because the GI needed to recheck Luke’s hgb and wanted to do a full panel to get the bigger picture. It was so hard to hold my little down while the guy drew Luke’s blood, but he handled it like a champ and was more angry that I woke him from his nap.
We also discussed the fact that Luke is still only able to eat 1-2 ounces at a time or he throws up everywhere. The doctor was somewhat concerned that perhaps Luke doesn’t have an adequate stomach capacity, but since he is gaining weight (very, very slowly) the small frequent feeds are fine for right now. It’s exhausting for me having to constantly feed him, but it’s okay. In 5 weeks we are to go back, and if Luke is still only able to eat 2 ounces at a time they will admit him to the hospital and do an upper GI with barium contrast to check his stomach and double check the capacity and make sure everything is functioning there……unless I feel like they need to do it sooner.
So at this point we are continuing with Elecare, continuing Prevacid morning and night, Zantac mid day, and introducing rice cereal. Normally the GI said they wouldn’t recommend rice cereal as a first food, but in Luke’s case it may help with the reflux and increasing stomach capacity. It may also help in the weight gain department. We go back on the 10th for further evaluation and information.